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Morning all. Does anyone else get in bed at night and your body/ limbs start to ache/ tingles, so your body feels heavy and you feel you can’t move your body in anyway? Well this happens to me at least once a week. However last night this happened to me last night. however, I had the worst pain in ...

How would you describe your emotion in this moment? Calm? 🙂 Sad? 😢 Angry? 😡 Anxious? 😨 Happy? 😄 - In episode 6 of 'PPE for the Mind' episode, Jo asks us to observe our bodies, noticing any areas of discomfort or emotions 💆‍♀️ To get the most out of the episodes, grab a cuppa ☕️, take a ...

I am wondering if anyone has seen either a geneticist or immunologist in the context of your MS. My brother is encouraging me to go, and he is also encouraging me to eat a keto diet. He doesn't quite articulate what he thinks these other doctors can do for me. My brother reads a lot of books about h...

Well I'm back to see if anyone knows anything. I've had problems with movement disorder since 2018. - while it's being worse the past few days alongside my spasticity. The thing that confused me is it's like I've got this new tic disorder or maybe it's just worse i dont know. Basically in the pas...

Hi! I<code>m not usually the one to write and ask, but there come moments like this when it</code>s just a natural action. So to the point...I understand your questions, life challenges, your ups, and down days. I`m an MS mom and have the disease for 17 years now. So the first time I met MS as a dia...

Happy Tuesday everyone! So I was really chuffed yesterday, I went out on the board for the first time in a year. The family and I love going to Sandbanks and we had a good day in the harbour. I was nervous, because last year, my brother and I (Identical twin) went for a swim and I realised very qu...

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...

Hi all, I am seriously new to all of this, My RRMS journey has been a whirlwind. I had the MRI and got diagnosed literally overnight. Multiple MS occurences all at once. After a huge course of steriods Methylprednisolone 1000mg 5 days. My flares have calmed down. Not gone away, I my hands are numb a...

Please let me start off by saying I'm not whining or being ungrateful...my current neurologist has been very efficient in organising scans and treatment over the years. But...I am wondering if I can change my neurologist. When I saw him about a year ago he encouraged me to get back with my ex husban...

Hello everyone, hope you are all well.......... It looks like I am/ have been starting to relapse. For a few weeks now my legs are heavy and numb and I am waking up in the morning needing almost 30 minutes to get my legs moving before I can get out of bed. My vision is going hazy throughout the day...