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Thanks for getting in touch

I need help in diagnosis, I need help in treatment. I’m not really feeling well since last night and really pisses me off. In the initial days, I was really happy but soon after my diagnosis of Multiple Scelerosis, my life is no longer the same. I’m unable to eat food and drink. Any help, advice, o...

@Cooper 

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Cooper

Divorce, illness payout she's going for

I have RRMS and its been slowish in development. Im now on ocrevus but things are happening with my cognitive behaviour - memory, focus, clarity of thought, problem solving. This has been getting gradually worse for a few years, but i knew my job inside out, so not too much of a problem. Of course i...

PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

@nnahdiliec 

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nnahdiliec

Travelling with Tysabri

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

@Ljburns 

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Ljburns

Hi!

Just joined and thought I’d say hi 👋 I was diagnosed with ms in April 2008 , after I had my eldest son. My relapse effected my eyes and my face and mouth where numb, I was given a course of intravenous steroids and that seemed to make a difference, but within 4 weeks I had another relapse that al...

@Magnum1 

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Magnum1

Tough subject :(

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now fo...

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g

@ettelrahs 

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ettelrahs

Copaxone side effect or not?

So I had a second relapse this year, this year has been far too much D: so I started my treatment on the 17th August, which is grand, but I have been extremely tired, to the point where I cannot function at all. I have recently finished folic acid, which I was talking for two months, but then starte...

@Shannon_OHara 

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Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...