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@AnnaKonuh 

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AnnaKonuh

puzzled

I signed a contract for conducting clinical trials of the drug. My relatives did not approve of my decision and each time they scared me with scary stories and the fact that I would be an experimental mouse🤷. In Ukraine, MS treatment is very expensive, and I think that for me this is a chance to ge...

@Francine@ 

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Francine@

Hi I am Francine

I was diagnosed with MS Nov 97 so nearly 23 years. I have been on various treatments . I am now on Ocrevus 6 monthly infusion. But because of COVID-19 my treatment has been delayed my last dose was the 26th September 2019 I was supposed to have my next dose In March . I just wanted to know if anyo...

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

@Dawson.McWatch 

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Dawson.McWatch

Hand washing is a must

Is anyone worried about the whole coronavirus I’m starting to worry I already have a weak Immune system due to my MS treatment... would that make me variable to the virus because of that or am I just overthinking this?!? Get back to me in the comments what’s your opinion

@Elsa75 

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Elsa75

Psoriasis

Hi everyone. Apologies that my question is not MS related but as Psoriasis is also an autoimmune condition I'm hoping someone will have some advice. For the least 5 years, my friend has been struggling to get treatment or even get an appointment at the local NHS Trust because her "condition is not ...

@julesfyah 

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julesfyah

Treatment

Well, one month on Copaxone and I've had to quit because of the injection site reactions getting too much. It's left dark marks on both hips, my stomach and left a dent in my left thigh after only injecting once. Glad I'm off it. How people could put themselves through that for years I have no idea....

@Jem_Carter 

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Jem_Carter

Can you change your neurologist?

Please let me start off by saying I'm not whining or being ungrateful...my current neurologist has been very efficient in organising scans and treatment over the years. But...I am wondering if I can change my neurologist. When I saw him about a year ago he encouraged me to get back with my ex husban...

@martinkelly 

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martinkelly

ppms treatments

I was diagnosed in 2012/2013 , but have had symptoms for 15 years or so. I'm on Fampyra and Lyrica which seem to help. Magnesium and Lecithin very important too. I am in Germany at the moment where the treatment is amazing compared to Ireland where I am from. Anyone else out there with questions on...

@schulz_alice 

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schulz_alice

Health is wealth those with MS

Never meet a group of people that are not updated on new discoveries and cures.I posted a message here to help but it was removed because admin claimed i broke house rules..How am i suppose to help other patients in the community when i can not direct them where to get a cure???If you are still with...