Hi. I was asked yesterday to document my idea of 'My Perfect Day'. I started to write...my perfect day certainly didn't include MS but my reality is that everyday includes something about MS. I'm tired, I'm sore and I don't want to play MS anymore.
So back to my narrative. For every few sentences I...
<p>So after alot of thinking, weighing up the pros and cons, I’ve gone back to work this week. Was I nervous at first, yes because I work in a school but mentally and emotionally it was the right decision for me. I checked with my doctor, I’m 9 months post year 2 of Cladribine so my risk...</p>
I've been on Tech for 4 years and I recently had a MRI scan which showed new lesions (sad and disappointed).
Yesterday My Neurologist called to formal tell me of the results. However my brain switched off and I didn't fully listen to what the next step is.
<p>I have been reading the posts about working as a nurse with MS, and have a quandary – I am a therapist, with RRMS, due to start Ocrevus post-lockdown.</p>
<p>The MS does not interfere with my ability to work. A colleague (the only one who knows about the MS) is anxious as to whether my employers ...</p>
<p>Afternoon all,<br>
–<br>
Not sure when I ought to drop the Covid-19 tag from the headline. I think it should last as long the lockdown lasts. We see the conversation subtly changing now to more of the looking ahead. You can’t panic forever.<br>
——<br>
MS Stuff<br>
R...</p>
<p>Hi all, just wondering if there are any other nurses out there?? </p>
<p>Are you still going to work?? </p>
<p>I was planning on carrying on going to work and just being extra careful and socially distancing myself in my personal life (aka not going to shops and restaurants etc) but then I spoke...</p>
Hi
After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...