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@John777 

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John777

Pain!!!

Does anyone have Trigeminal neuralgia? I’ve been experiencing this maybe a couple times a day, in the last 10 days What’s the best way to deal with this? It hurts😠

@Sarah_T 

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Sarah_T

How do you know if its optic neuritis?

Hi I have RRMS but I've never had optic neuritis but since Monday vision has been blurry in my right eye and I've had a weird headache behind my right eye. The kind thats fine if I keep my head still but if I bend down it really hurts. I've been keeping the headache at bay with paracetamol 3 tim...

@neleh 

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neleh

Advice on catheters

Any advice on catheters, I am a 64 year old woman and I am looking into the best type of system to use, I have minimal mobility and already have the peristeen system for my bowel which hubby does for me, any advice would be helpful, thanks H.

@LisaSD 

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LisaSD

Talking With My Family

I can separate my family into three groups. First up are my siblings and my daddy. Daddy and my older sister will ask sometimes how I am doing, but I feel it is mostly like an obligation to them. My two older brothers never ask and I never bring it up. Next up are my in-laws. They always ask and th...

@Lindsay_Muir 

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Lindsay_Muir

training during flare up

Hi! I have a question about how everyone manages working out while in a flare up. do you still push through or is it better to keep things calm while my body is sorting itself out? I just started my flare up 5 days ago and I’m having a moment of frustration ( make that many moments ) My fatigue...

Used a wheelchair for the first time yesterday!!

and it made me feel so much better. Basically i could enjoy our day out at the Black Country museum instead of looking down at the floor trying to keep my balance and stop falling over!! And, by the end of the day i wasn't totally knackered by fatigue. I'd not planned on it but the woman at the r...

@djmazzapie 

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djmazzapie

Tecfidera weight gain

Just weighed myself 56.7kg! I started Tect about 3 months ago, I used to weigh 53, I am eating as normal, and doing exercise, nothing has changed except taking the meds, oh and maybe a bit more peanut butter! Any tips? Thank you

Tecfidera weight gain

Just weighed myself 56.7kg! I started Tect about 3 months ago, I used to weigh 53, I am eating as normal, and doing exercise, nothing has changed except taking the meds, oh and maybe a bit more peanut butter! Any tips? Thank you

@laurainiho 

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laurainiho

Re starting treatment

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

@juliacemilligan 

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juliacemilligan

Ballet

Don't know if anyone is interested in ballet but I found this when looking for activities for my work to post about. It's at the Royal Opera House streaming from the 29th of May until the 11th June. A new ballet by Cathy Marston telling the true story of Jacqueline du Pré, the prodigiously gifted ...