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@Lilypalooza 

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Lilypalooza

Having a wobble

I've had symptoms for the past 8 years but was only officially diagnosed in February. I thought I was handling it ok - wasn't looking to change anything I'd been doing just maybe not push myself as hard - then Covid-19 hit. Again was ok at the start but now my fatigue is hitting me earlier and earli...

@DominicS 

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DominicS

Remylenation: The Holy Grail

Finding a way to get the human nervous system to grow back the myelin, the nerve covering that MS attacks and causes the symptoms, be they minor or major, we all experience is the next huge hurdle. - I link to a total science paper here: https://www.cell.com/cell-reports/pdf/S2211-1247(20)30611-2.pd...

eyesight

I am one of those people who has all MS symptoms, but especially loss of eyesight. Anyhow I got a jpb. mostly home work, translation, etc. I told them I have MS but did not tell them I am registered blind. I have done this job for about 4 months. In face to face situations I can fake it, and mostly...

@Emma_Byers 

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Emma_Byers

Face and head pain

Sorry long post!! Finally got a diagnosis in March this year. Been a long haul from 2013. In the last 4 days I've had excruciating pain in my face and a banging headache. Back in 2013 it was optic neuritis I was diagnosed with but I ended up with more symptoms and everything got worse over the years...

@Browneyedlady 

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Browneyedlady

I need answers

<p>I was diagnosed with MS in 2009. </p> <p>My complaint is my neurologist. She says I have no need for medication at this time and never calls or has me schedule an appointment. She doesn’t listen to my symptoms. I asked many questions and she didn’t answer any.</p> <p>What can I do?...</p>

@SammyB 

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SammyB

Symptoms

I need some advice on disclosing my symptoms #symptoms
London, United Kingdom

@poleyjo 

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poleyjo

First Neurology appointment

So after more than 6 months of real struggle with suspected MS symptoms I finally have my first appointment with a neurologist on Sunday. Can anyone please give me insight on what to expect? I have been tracking my symptoms and will condense this list and take it along with me. Is there anything els...

@kmanno 

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kmanno

Cold vs Hot

Has anyone noticed that the winter weather seems to exacerbate symptoms more than the heat of the summer? KM

Experiences of Ocrevus

Before I start, I want to say, I know it's early days... I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...

@mser79 

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mser79

3rd infusion of lemtrada?

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...