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@KCshea 

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KCshea

Hello

Hello to everyone, I have just joined you. I was initially diagnosed in 2009 with ADEM & thought it was benign MS. I have had ongoing symptoms over recent years which led to a recent MRI showing multiple lesions. The Consultant has diagnosed MS and referred me to Queens Square in London. I ...

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

@enzo_licata 

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enzo_licata

Tecfidera

Hi everyone hope someone can help me, I was wondering if anyone who has taken TECFIDERA had any improvements in the symptoms 👍

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@UpsandDowns 

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UpsandDowns

Relapse Symptoms

Hi everyone, I am abit frustrated.. I can not find what l am looking for in any MS related sites. Do i have to have a relapse to get steroid injection in other words can i have steroids to dampen down the symptoms I have been experiencing? Thanks

@angieH 

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angieH

Joint pain

Hi! I am hoping to get some feedback. I am dx RRMS. Doing pretty well, on Glatopa (copaxone) about three years. Anyway, I am having serious joint pain in both hands and mainly thumbs. Maybe carpal tunnel but I have much joint pain in other areas like knees and feet. But the hands are the worst. An...

@Rose23 

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Rose23

Difficult diagnosis, am I mad!

Hi I’m so sorry if this is inappropriate but I’m just upset and don’t have anyone I feel will understand to talk to. I have just come off a telephone consultation with my (very nice) GP. I had an MRI as I have been having symptoms that my GP agreed sound like MS for ages - even years. I’m 36yrs old....

@KeepSmyelin99 

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KeepSmyelin99

Checking in! :D

Hi everyone! I'm just coming back to check in as I realise I've not been around for a while. I had NEDA (No Evidence of Disease Activity) on my last MRI and have been feeling fine since then *touch wood* I became friends with an amazing woman who also has MS and hosts a podcast about living with a...

@UpsandDowns 

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UpsandDowns

Critical Age

What do we know about MS and menopause? How do symptoms change, Is there an increased risks of getting a relapse? How do the disability level change? Thanks ladies and sorry gents.

@martinkelly 

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martinkelly

ppms treatments

I was diagnosed in 2012/2013 , but have had symptoms for 15 years or so. I'm on Fampyra and Lyrica which seem to help. Magnesium and Lecithin very important too. I am in Germany at the moment where the treatment is amazing compared to Ireland where I am from. Anyone else out there with questions on...