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My name is karen. I was born in England. I will be 43, this year. I had three older siblings. All of them were born three years apart... Five years later I was born. Back in 2002-03, my second oldest sister started having symptoms. It took along time for her diagnosis. By 2020, and my sister can do...

Hi all, The last couple of days I have been experiencing some weakness in my left leg, going from the area around the base of my spine all the way down to my foot. Sometimes it extends upwards into my left arm and shoulder. This is a totally new symptom for me and otherwise I feel well but this co...

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I am wondering if anyone has seen either a geneticist or immunologist in the context of your MS. My brother is encouraging me to go, and he is also encouraging me to eat a keto diet. He doesn't quite articulate what he thinks these other doctors can do for me. My brother reads a lot of books about h...

Hi, I was wondering if anyone has had trigeminal neuralgia present as teeth pain! I have had sinuses the made my teeth hurt before but not this pulsating, shocking kind of pain along the upper row of teeth on left side. I thought tn was more like head/face pain? At first I thought it was sensitiv...

Hi Has anyone had any news regarding DMT treatments in the UK now? My MS nurse is waiting to hear when they might be able to re-start, and I am on the list for the initial Ocrevus infusion - hoping this will be soon, of course.. Wishing you all well.

Well I'm back to see if anyone knows anything. I've had problems with movement disorder since 2018. - while it's being worse the past few days alongside my spasticity. The thing that confused me is it's like I've got this new tic disorder or maybe it's just worse i dont know. Basically in the pas...

Hello to everyone, I have just joined you. I was initially diagnosed in 2009 with ADEM &amp; thought it was benign MS. I have had ongoing symptoms over recent years which led to a recent MRI showing multiple lesions. The Consultant has diagnosed MS and referred me to Queens Square in London. I ...

Happy Tuesday everyone! So I was really chuffed yesterday, I went out on the board for the first time in a year. The family and I love going to Sandbanks and we had a good day in the harbour. I was nervous, because last year, my brother and I (Identical twin) went for a swim and I realised very qu...

Hi! I am hoping to get some feedback. I am dx RRMS. Doing pretty well, on Glatopa (copaxone) about three years. Anyway, I am having serious joint pain in both hands and mainly thumbs. Maybe carpal tunnel but I have much joint pain in other areas like knees and feet. But the hands are the worst. An...