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This is my new post and it should go into search

Hello my name is Martin Petts and I am building this website.

Have you been a PPI rep on a project?

Hi all I'm hoping you can help. I am speaking about 'Patient and Public Involvement' (PPI) at the MS Frontiers conference in Bath, UK on the 5th July. I'm keen to speak with MSers who have been a PPI representative on research projects... is this you? Are you happy to share your experiences? If s...

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...

Me, MS, weight and Keto. Long post!

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

My Ketogenic Diet

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...

Impact of MS on pregnancy and children

Hi all We are looking for people to participate in a research project aimed at understanding the impact of MS on pregnancy and having children. The results from this research would be used to help raise awareness and support for people with MS with children or who would like to start a family. If ...

@minnie 

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minnie

Soursop - MS people

Hi there, Ive had MS (relapse and remittance) for 15 year now. I was just wondering whether anyone has heard of 'Soursop' or have tried the herbs/ drink. If so, How did you find it? The reason why I am asking is because I have heard from a number of people (people who don't know each other) that ...