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@michael_washburn 

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michael_washburn

Dementia due to MS?

After nearly 3 years of searching for answers to my wife's rapid cognitive decline, multiple tests and MRIs and second opinions it is clear she has a the syndrome of Dementia. Our local neurologist as well as the team at UCLA agree that the cause is MS. Images show significant brain atrophy. I ...

SMART Technologies

I am a scientist based in the UK. I'm doing some research in the area for SMART technologies ie technology that improves the patients experience when they need to take medications. Specifically, I am interested in two technologies that have been introduced for MS patients. The first is for patie...

Is my MS progressing?

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...

@em.nuss 

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em.nuss

Eye Pain?

Hey everyone, hope you're all doing well. I have been experiencing pretty consistent pain that feels as if it's coming from behind or in my eyes. At first I had been thinking it was a complication with my contacts which I got treated for but here I am with the same pain weeks later and it seems almo...

@Rel12 

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Rel12

Any shows/ Docs/ movies with MS?

Hey guys! I hope everyone is enjoying their summer as much as they can. So I always go on a binge search of any documentaries, movies or shows that deal with MS. I would love some recommendations! Only ones I have seen: - Living proof (documentary) - 100 Meters (Netflix movie) so good!

@DominicS 

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DominicS

Long term Cladribine results

Are you taking Cladribine for your MS. Turns out it is pretty decent stuff! - Another example of why we need everyone with MS to sign up to the UK MS Register. - https://ukmsregister.org/ - "Over half of MS patients analysed did not relapse or experience disability progression during 60 months of f...

Coronvairus /Ocrelizumab vaccine trial

Hi all, - If you take ocrelizumab (Ocrevus) , as I do, and want to participate in a vaccine trial then have a read of this post on the Barts MS blog and get in touch with them via the blog. - https://multiple-sclerosis-research.org/2020/06/mscovid19-covax-or-coronavirus-ocrelizumab-vaccination-study...