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@jennymay1548 

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jennymay1548

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

@newbie 

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newbie

DMT and work

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

@twiggy3 

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twiggy3

Flare up still going on

Seriously how long can a flare up of old symptoms last ? And can a flare not relapse happen regardless of any infection ? Appreciate any help with this

@ChristopherM 

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ChristopherM

Back pain

I was diagnosed with relapse remitting MS in around 2010, and have been very fortunate to only experience 1 relapse since this first attack. It may be coincidence, however since the initial diagnosis and subsequent treatment, I have been experiencing back pain which is worse in the morning. The pain...

@twiggy3 

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twiggy3

Flare up / relapse

Hi to you all , it's not a relapse I'm having as mri shows no new lesion. But my old symptoms have flared up for 5 weeks now which is getting me down. Can a flare up last week's/ months. Never had this happen before, as I've been symptom free for 16 yrs. Had ms 22 years . Any info id appreciate. Th...

Relapses

Are relapses always new lesions ? Or can old symptoms crop up and it's them that become inflamed. Thanks

@twiggy3 

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twiggy3

SPMS

Is SPMS a gradual transition or can it happen quite quickly. Does it come out of the blue or follow after a relapse. Any information appreciated thanks

@Lisamarie@6 

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Lisamarie@6

Recently diagnosed

Hi , I was diagnosed last nov with MS . I have been on Copazone since jan but after a second relapse I was told it’s not working . I’m starting Tysabri on the 17th July . Just wondering if there’s many side effects . I’m still getting my head around the diagnosis. Sorry just another question , I’m ...

@twiggy3 

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twiggy3

What's happening

Had rrms 22 years last relapse 16 yrs ago. Symptom free really so very lucky. A month ago all symptoms came back just like when diagnosed. Mri showed no relapse . Don't know when this will subside . Any info much appreciated. Thanks

@cwright17 

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cwright17

People's experiences with medication

Hi, after a recent spurt of relapses, my consultant and his team are putting me forward for a change in my medication. I am normally on the 3 times weekly copaxone, and they are looking at ocrelizumab. I've looked at the BNF, and medicines.org.uk, at the ocrelizumab, and wanted peoples take on it. L...