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@ncm22 

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ncm22

Started dmds 8 years after diagnosed hel

Hi, I have rrms, diagnosed in 2010, symptoms since 2007. I started copaxone in 2018, had MRI new lesions. So started tecfidera in February this year. I just wondered as i have not been on dmds for 8 years after being diagnosed. Whether the dmds would be less effective going forward, I know t...

@Emma_Byers 

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Emma_Byers

Face and head pain

Sorry long post!! Finally got a diagnosis in March this year. Been a long haul from 2013. In the last 4 days I've had excruciating pain in my face and a banging headache. Back in 2013 it was optic neuritis I was diagnosed with but I ended up with more symptoms and everything got worse over the years...

@ruggermad 

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ruggermad

Relapse again - old symptoms returned

Hello everyone, hope you are all well.......... It looks like I am/ have been starting to relapse. For a few weeks now my legs are heavy and numb and I am waking up in the morning needing almost 30 minutes to get my legs moving before I can get out of bed. My vision is going hazy throughout the day...

@ncm22 

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ncm22

Brainstem relapse help please ?

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

@Muffie 

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Muffie

Daily symptoms - every day

Can someone help me? I’ve searched the web and all the MS sites and can’t find the answer. I would like to hear from someone who has symptoms daily that come and go. Like everyday. For instance I permanently have numb feet but sometimes in the day it travels up to my knees then goes away back to jus...

@pixiedragon 

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pixiedragon

Pip fail

Hi this is the first time I’ve posted on anything but I’ve just got that angry and upset I need to do something. I was diagnosed with rrms in 2018 having symptoms for 3 years. I applied for pip after my last relapse, late last year that got me diagnosed with ataxia that has robed me of my balance I ...

@AmyS 

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AmyS

MS, Covid and Work

Hi, hoping for some advice - I have emailed my neurologist but waiting a while to hear back so thought I'd see what people on here think. I work as a secondary school teacher. Have been teaching remotely but deciding about returning. This week there is a training day (staggered in small groups) the...

@ncm22 

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ncm22

How long have you had ms ??

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a veng...