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@Aiga_Akmentina 

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Aiga_Akmentina

What`s your well-being story

Hi! I<code>m not usually the one to write and ask, but there come moments like this when it</code>s just a natural action. So to the point...I understand your questions, life challenges, your ups, and down days. I`m an MS mom and have the disease for 17 years now. So the first time I met MS as a dia...

@enzo_licata 

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enzo_licata

Back support

Hi all hope all well. I was just wondering if anyone knows anything about back support btace/vest to help, with back pain and posture 👍

@Birdi 

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Birdi

Extreme Foot pain and spasms

Hello Lovely People.... I have RRMS, late diagnosis at 55, after 20 years of misdiagnosis. I’m on Tecfidera. I am experiencing more and disabling issues. I have to use walking sticks and by the end of the day, a mobility scooter. I have extreme pain in both feet, some evening spasms and string elect...

@KCshea 

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KCshea

Hello

Hello to everyone, I have just joined you. I was initially diagnosed in 2009 with ADEM &amp; thought it was benign MS. I have had ongoing symptoms over recent years which led to a recent MRI showing multiple lesions. The Consultant has diagnosed MS and referred me to Queens Square in London. I ...

@watsoncraig 

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watsoncraig

Eye Clinic

I have a prism on my glasses to correct diploplia(double vision). Every 6 months the diploplia is checked and if required the Prism strength is adjusted. The Eye Clinic has given me my next appointment which is (because of the pandemic) a telephone appointment. I understand the whole safety and dist...

@angieH 

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angieH

RRMS to SPMS?

I have read that rrms always eventually becomes spms. Is this so? I have a neuro who says that usually by my age (53 and diagnosed at 29), ms has established the pattern it is going to be. One sounds promising and one not so much. What would clue me in that it’s becoming spms? I have more difficu...

@Alex1723 

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Alex1723

Paramedicine with MS

Hi guys, I have always wanted to be a paramedic (am currently an RN) but have recently been tentatively diagnosed with MS. I am wondering if anyone has successfully gained employment as a paramedic with a known diagnosis of MS or whether I need to put this dream to bed. Thank you :)

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@Claire_Juliet_Woon 

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Claire_Juliet_Woon

Advise on Exercise

Hi I have RRMS, diagnosed September last year and been on Tec since May this year. Anyway to cut long story short started weight training again after a period of not doing anything, the issue I have is after lifting weights I have had NO arm/muscle ache at all the day after, it is like I have not ...