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@ncm22 

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ncm22

RRMS TO SPMS

Hi, I was just thinking they say rrms progresses to spms. And it usually is 10 to 15 years after being diagnosed. I would like to know other peoples experiences, if they would like to share. I have been diagnosed since 2010 with rrms, but had symptoms since 2007. Main symptoms numbness from wais...

@Andraz 

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Andraz

Multiple Sclerosis symptoms appearing

Over the last 2 weeks i've started to notice a lot of MS symptoms, like muscle twitching, spasms, weakness, fatigue, pins and needles, numbness. Most of them appeared in the first week and are now slowly getting a bit worse. I wanna know what was your experience of first getting MS symptoms and in w...

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@Claire_Juliet_Woon 

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Claire_Juliet_Woon

Advise on Exercise

Hi I have RRMS, diagnosed September last year and been on Tec since May this year. Anyway to cut long story short started weight training again after a period of not doing anything, the issue I have is after lifting weights I have had NO arm/muscle ache at all the day after, it is like I have not ...

@Rose23 

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Rose23

Difficult diagnosis, am I mad!

Hi I’m so sorry if this is inappropriate but I’m just upset and don’t have anyone I feel will understand to talk to. I have just come off a telephone consultation with my (very nice) GP. I had an MRI as I have been having symptoms that my GP agreed sound like MS for ages - even years. I’m 36yrs old....

@Bridgett_Tadel 

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Bridgett_Tadel

Steroids not helping

Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...

@carolelawrence 

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carolelawrence

Not happy!

Long story..had mri Feb 2 non specific liasions on my brain and 2 non specific liasions on spine. My left leg and foot numb since Jan. My right leg and foot and my right toes numb last 4 weeks..so my mobilty gradually deteriorating last 14months..dreadful burning night pain in legs and feet burning ...

@ncm22 

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ncm22

Brainstem relapse help please ?

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

@funnybank 

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funnybank

hearing loss

I've looked it up and apparently, it's a rare effect of MS only 6%. And doctors prefer to say that is probably caused by another factor. I've just lost hearing in my second ear, the first went 12 years ago in very similar sudden onset. I'm on steroids but I have to say this has really knocked all h...

@ncm22 

Last reply

ncm22

How long have you had ms ??

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...