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Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@DominicS 

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DominicS

New allergies on Ocrelizumab?

Morning, I am 50, been diagnosed 26y and on 4th DMT. I have never ever had any kind of hayfever type thing. Lately, my eyes have been itching like buggery and though not too red and puffy I could happily gouge them out at times. I have had itchy patches of skin and that is to be expected. I wond...

New to community

I understand that is network is based out of the UK, But is anyone here from the United States?

new pain

hey just went to the cafe and work to a get a coffee, and upon trying to pick it up with my right arm i was hit with almost unbearable muscle pain. this isn't one of my usual muscular gripes that we all face day to day, but rather feels like i've torn a bicep or something. super painful and now am ...

Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

What digital services do you use?

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

Elegant ladies' shoes for orthotics

I'm fed up with the laced sensible shoes I need to wear and was SO pleased to discover very cleverly-made smart shoes while on holiday. It's a New Zealand manufacturer but I've found a British supplier. PM me if you want details.

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...