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@ncm22 

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ncm22

How long have you had ms ??

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...

@juliacemilligan 

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juliacemilligan

Ballet

Don't know if anyone is interested in ballet but I found this when looking for activities for my work to post about. It's at the Royal Opera House streaming from the 29th of May until the 11th June. A new ballet by Cathy Marston telling the true story of Jacqueline du Pré, the prodigiously gifted ...

@Sophietest 

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Sophietest

Family Matters

https://www.instagram.com/p/CArz6I8gwTj/ Family Matters is a new short film series by Shift.ms that aims to capture the value of an MSer’s close support network and the impacts that diagnosis can have on relationships. When Daniel was 15 years-old he woke up one morning unable to see or walk. He wa...

@Kim_Molette 

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Kim_Molette

Advice requested. Getting despite

Tomorrow marks my first visit after my diagnosing doctor told me I have MS. He quit his job before our next appointment. This was followed by an aborted spinal surgery. I had quit smoking cigs (after almost 40 years of smoking) in order to have this surgery. I was taking it seriously. The morning of...

@Buddha123 

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Buddha123

Technologies to support MS

Hi there, how am a newbie to the forum so hello all... I am looking for some advice to help me support a family member with MS who is quite isolated.I was wondering if anyone could advise on any technologies available to ensure my aunt feels more included and connected to friends and family. Her mo...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

@mj2000uk 

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mj2000uk

New symptom - internal tremor.

Over the last couple of months I seem to have developed a new symptom. I now feel like the inside of my body is shaking but the outside of my body is not! I spoke to my MS nurse and they did not seem overly concerned with this. however, I notice it more and more and it is beginning to drive me slig...

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@Rachel_Newby 

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Rachel_Newby

New from downunder

Hi all, I’m new to the site, just thought I’d say hello. Bit a about me, I’m a Brit living down under, I have a 10 year old child.....opps I meant 11 (do birthday during covid lock down even count!?! 😂) I love playing hockey and drinking coffee looking out over the sea 🌊 Rx