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@.Bryony. 

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.Bryony.

Tysabri Eligibility

Hi all, I wondered if anyone could help answer some questions/give their experience.... I was diagnosed in May this year with rapid RRMS following loss of sensation/power in right leg/Side in December 19 and then optic neuritis in April 20. First MRI was in March 20. I was originally told I would r...

Elegant ladies' shoes for orthotics

I'm fed up with the laced sensible shoes I need to wear and was SO pleased to discover very cleverly-made smart shoes while on holiday. It's a New Zealand manufacturer but I've found a British supplier. PM me if you want details.

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@Vixen 

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Vixen

SPMS rejection

Time to get campaigning again folks; NICE have rejected Siponimod for SPMS in the UK https://www.mstrust.org.uk/news/siponimod-active-secondary-progressive-ms-rejected-nice Might have to get my battle hat on again.....

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

The coronavirus and MS – updated

From the International MS Federation. June 2020 - https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/ - Just the latest, that is all.

Swollen legs

Hi , I am new to forum, I have had Ms for 20+ years, about 8 month ago I started having problems with swelling on my left leg and foot (this is the side MS effects me) I have been back and forth to my doctors who just tell me to use support socks, but they do not work. The swelling effects my walkin...

@Shannon_Devlaminck 

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Shannon_Devlaminck

Well it’s been a minute.

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...

@CHARLST0N 

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CHARLST0N

Saying Hello

Hi all, I am seriously new to all of this, My RRMS journey has been a whirlwind. I had the MRI and got diagnosed literally overnight. Multiple MS occurences all at once. After a huge course of steriods Methylprednisolone 1000mg 5 days. My flares have calmed down. Not gone away, I my hands are numb a...