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@charlotte_wright 

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charlotte_wright

NHS Letters, DMT

Hi all, I had a multiple disciplinary team meeting on Monday 20/07/2020, discussing putting me on a different DMT, and I was wondering if anyone knew the timescales of the results of that meeting. My neuro consultation on the 22nd informed me that the meeting had gone ahead, but the results, or ...

@michael_washburn 

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michael_washburn

Dementia due to MS?

After nearly 3 years of searching for answers to my wife's rapid cognitive decline, multiple tests and MRIs and second opinions it is clear she has a the syndrome of Dementia. Our local neurologist as well as the team at UCLA agree that the cause is MS. Images show significant brain atrophy. I ...

It touches home as I am a 45 years old f

It touches home as I am a 45 years old female with very aggressive Multiple Sclerosis that does stand up comedy. Ms has negatively impacted my life in so many ways, but I gotta say that it has made me stronger and a better person in a lot of ways. I feel so happy and excited to see myself recover fr...

@dalebrooks 

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dalebrooks

Symptoms before diagnosis how long?

My doctor told me that I have dormant multiple sclerosis meaning that I have the gray areas in my head and most of the symptoms but not the bands in my spine. My question is : is it normal to have symptoms for years before a real diagnosis? My dr told me that dormant ms isn’t a real diagnosis. So as...

Multiple Sclerosis and Turmeric: An Unscientific Trial

Since I've been told by the infamous Dr G (Dr Giavanoni) that it would be too expensive to clinically trial turmeric, I've created this Facebook group to share people's experiences with and document any benefits or side effects that they have after trying half a teaspoon of the stuff after eating

@Miranda_McNair 

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Miranda_McNair

Newly Diagnosed: 6-29-20

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...