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Hi there, so lots of recent reports around the EB virus and MS floating around. One of the doctors at the recent Berlin conference (Shift video clip) was specific about linking MS to contracting viruses in the teenage years. So, I had glandular fever really badly when I was fifteen, off school for a...

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

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Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

I’ve changed my profile picture! I just wanted you all to know that: Yes I can’t walk very well Yes I have a numb right hand Yes I have pain in my legs Yes I have balance issues ... so I flew to Geneva... and sat on a train for hours that took me to the top of a mountain! It was a challenge but blo...

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Hi guys, i am right now taking treatment for MS in India (Ayush Prana) in a specialized center for Multiple Sclerosis. If I can talk from my own experience I personally must say that it is really very effective. Not only for me but other patients around me are improving also. We all suffer from dif...

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...