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Hi all I'm hoping you can help. I am speaking about 'Patient and Public Involvement' (PPI) at the MS Frontiers conference in Bath, UK on the 5th July. I'm keen to speak with MSers who have been a PPI representative on research projects... is this you? Are you happy to share your experiences? If s...

I start this year my caminho Santiago. I was afraid always thinking and if a can't walk more that 10km. Well it was amazing day by day I whant more :) I share my croundfounding and in there is all the social media. I beg all the community to share my journey, let me show that is possible for all o...

Anyone dealing with hair loss? I don’t know if it’s because of MS or a medication, but about half my hair is gone.

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Hey pals, here is a video of me talking about my MS pain, and they have animated me!!! Please watch and share as you feel appropriate :) Happy Festive Times xxx https://youtu.be/DD6DCgB1SsY

Hi there, so lots of recent reports around the EB virus and MS floating around. One of the doctors at the recent Berlin conference (Shift video clip) was specific about linking MS to contracting viruses in the teenage years. So, I had glandular fever really badly when I was fifteen, off school for a...

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

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Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...