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Feeling alone

Hi. I was asked yesterday to document my idea of 'My Perfect Day'. I started to write...my perfect day certainly didn't include MS but my reality is that everyday includes something about MS. I'm tired, I'm sore and I don't want to play MS anymore. So back to my narrative. For every few sentences I...

@DominicS 

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DominicS

Remylenation: The Holy Grail

Finding a way to get the human nervous system to grow back the myelin, the nerve covering that MS attacks and causes the symptoms, be they minor or major, we all experience is the next huge hurdle. - I link to a total science paper here: https://www.cell.com/cell-reports/pdf/S2211-1247(20)30611-2.pd...

@Sophietest 

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Sophietest

📢 US volunteer opportunity

📢 Calling all US-based MSers 📢 Do you live in the US? Fancy helping Shift.ms with something? We have a new volunteer role available that is based around the US MS community. If you're interested please email sophie@shift.ms today 📨 Thank you.

eyesight

I am one of those people who has all MS symptoms, but especially loss of eyesight. Anyhow I got a jpb. mostly home work, translation, etc. I told them I have MS but did not tell them I am registered blind. I have done this job for about 4 months. In face to face situations I can fake it, and mostly...

@Massery 

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Massery

Alone!!

I am look for something that I can do that will help me to not feel so worthless. ( I am67 years old and my ms Has me confined to a wheelchair. I was dx in 1981)

@DominicS 

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DominicS

Living with/managing MS

Hi all. I have never written about my MS on my blog before. 26y of compartmentalising it. This is about the approach I take to stay sane and manage it. - https://dominicshadbolt.com/2020/05/12/it-is-my-cargo/

MS and assistance dogs

HI, I have just written a piece on MS and assistance dogs on the Barts blog- and how they help hundreds of people with MS lead independent lives:https://multiple-sclerosis-research.org/2020/05/mscovid19-dogs-are-being-trained-to-sniff-out-covid-19/?utm_source=rss&utm_medium=rss&utm_campaign...

@Teide_Barrett 

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Teide_Barrett

Ocrevus infusions

Hi I’m teide I’m 24 and I have RRMS. I was diagnosed in October 2018.. I spent 1 1/2 years on tecfidera but my ms just kept progressing. I started ocrevus last Tuesday and had my first 1/2 dose.. Tuesday I felt ok! I was surprised how well I felt on Wednesday but since then it’s been horrific! Sle...

@Murray 

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Murray

Disclosing MS diagnosis

<p>I have been reading the posts about working as a nurse with MS, and have a quandary – I am a therapist, with RRMS, due to start Ocrevus post-lockdown.</p> <p>The MS does not interfere with my ability to work. A colleague (the only one who knows about the MS) is anxious as to whether my employers ...</p>

@g20-1 

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g20-1

Fatigue with ms

<p>Hi all i find im a morning person with my rr ms, by lunchtime my fatigue starts to set in and i feel like im done the day. Does anyone else feel like this?</p> <div class="i-support-link"> </div>