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I’m not on medication for my PPMS & only diagnosed mid April. Tbh I feel totally abandoned by my neuro ms nurse & consultant. The ‘advice/ support’ line for them doesn’t even allow messages to be left, you have to wait for a clerk to answer & they give you a tel appt, if no one answers t...

I am getting a new med for my ms and I am wondering what would be a good one to change from copaxone?

What is it like to have Multiple Sclerosis? MS is a strange disease. It attacks you, from every angle, but some you cannot imagine. If you walked around in a space suit that gave you general MS symptoms you would miss a lot. Basically if you have MS you really should be living on a space station. T...

How does one overlook a main family member thinking I faked the diagnosis of MS..?

Now let’s get a cure

Sorry in advance ... I just need to vent a little and I thought this would be the right place. It's nice to have a group of people that know what you're going through. I'm seriously on the struggle bus. I've been deemed "high risk" for covid so I've been exiled from my home and banished to my nanna'...

I can separate my family into three groups. First up are my siblings and my daddy. Daddy and my older sister will ask sometimes how I am doing, but I feel it is mostly like an obligation to them. My two older brothers never ask and I never bring it up. Next up are my in-laws. They always ask and th...

Hi everyone hope all are keeping safe .Just had a letter from the my M.S. Nurse Informing me my Ocrevus Infusion has been rescheduled to July ( original one cancelled due to virus) I was also told I may be more susceptible to the virus and also may be unable to accept a vaccine for the Virus should ...

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...