Looking for
something specific?

I'd like to hear first or at most second hand an account of what it's like for a PwMS to go through COVID. I'm surprised and a bit concerned that I've not seen one here yet. Either we're very good at shielding, or we tend to die of COVID, or both. Or it's just a quirk of stats, and the rate of inf...

Mindfulness may help manage mood changes in MS. https://www.medicalnewstoday.com/articles/ms-mindfulness-may-help-manage-mood-changes Something I touched upon last month, in https://www.mstrust.org.uk/news/views-and-comments/mental-health-and-ms-emotional-balancing-act "Meditation, specifically ...

I'm sorry if this isn't allowed, please delete...I'm just trying to find someone who understands what I'm going through who can maybe offer some words of advice. I am a woman who has lived with MS for about 15 years, abs and I have recently become involved in a BDSM relationship. Does anyone else in...

Anyone any experience of this? https://www.taopatch.co/ms

Hi! I have a question about how everyone manages working out while in a flare up. do you still push through or is it better to keep things calm while my body is sorting itself out? I just started my flare up 5 days ago and I’m having a moment of frustration ( make that many moments ) My fatigue...

I’m not on medication for my PPMS & only diagnosed mid April. Tbh I feel totally abandoned by my neuro ms nurse & consultant. The ‘advice/ support’ line for them doesn’t even allow messages to be left, you have to wait for a clerk to answer & they give you a tel appt, if no one answers t...

I am getting a new med for my ms and I am wondering what would be a good one to change from copaxone?

What is it like to have Multiple Sclerosis? MS is a strange disease. It attacks you, from every angle, but some you cannot imagine. If you walked around in a space suit that gave you general MS symptoms you would miss a lot. Basically if you have MS you really should be living on a space station. T...

How does one overlook a main family member thinking I faked the diagnosis of MS..?