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@kbuda 

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kbuda

Friends

New here and not sure how to find friends. Is this like FB for MS?

@PPE_ForTheMind 

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PPE_ForTheMind

PPE for the Mind - live session today

If you’ve missed it, we’ve been releasing a video a week as part of a course to help build mental resilience called 'PPE for the Mind'. This week we’re doing things a little differently - join Neuropsychologist Jo and MSer Gemma for a live zoom session, 4pm BST, today (Friday 26th June). Places ar...

@angieH 

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angieH

RRMS to SPMS?

I have read that rrms always eventually becomes spms. Is this so? I have a neuro who says that usually by my age (53 and diagnosed at 29), ms has established the pattern it is going to be. One sounds promising and one not so much. What would clue me in that it’s becoming spms? I have more difficu...

alone

I am victim of domestic abuse due to having ms it sucksseems I cannot post this here

alone

I am victim of domestic abuse due to having ms it sucks

@Vixen 

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Vixen

SPMS rejection

Time to get campaigning again folks; NICE have rejected Siponimod for SPMS in the UK https://www.mstrust.org.uk/news/siponimod-active-secondary-progressive-ms-rejected-nice Might have to get my battle hat on again.....

@UpsandDowns 

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UpsandDowns

Relapse Symptoms

Hi everyone, I am abit frustrated.. I can not find what l am looking for in any MS related sites. Do i have to have a relapse to get steroid injection in other words can i have steroids to dampen down the symptoms I have been experiencing? Thanks

The coronavirus and MS – updated

From the International MS Federation. June 2020 - https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/ - Just the latest, that is all.

@Ralee 

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Ralee

Paddle Boarding

Happy Tuesday everyone! So I was really chuffed yesterday, I went out on the board for the first time in a year. The family and I love going to Sandbanks and we had a good day in the harbour. I was nervous, because last year, my brother and I (Identical twin) went for a swim and I realised very qu...

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...