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@sharanjitkaur 

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sharanjitkaur

Treatment for MS

Hi guys, i am right now taking treatment for MS in India (Ayush Prana) in a specialized center for Multiple Sclerosis. If I can talk from my own experience I personally must say that it is really very effective. Not only for me but other patients around me are improving also. We all suffer from dif...

@Demelza 

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Demelza

B12 injections stopped pills instead

Afternoon, Have had MS for 10 years and been having B12 injections for about the same time. Have injections every 8 weeks until Monday when the appt was cancelled. Have been told today that injections are no longer available and it’s pills now which I can get a prescription for in 2 weeks! Anybody...

eyesight

I am one of those people who has all MS symptoms, but especially loss of eyesight. Anyhow I got a jpb. mostly home work, translation, etc. I told them I have MS but did not tell them I am registered blind. I have done this job for about 4 months. In face to face situations I can fake it, and mostly...

Impact of MS on pregnancy and children

Hi all We are looking for people to participate in a research project aimed at understanding the impact of MS on pregnancy and having children. The results from this research would be used to help raise awareness and support for people with MS with children or who would like to start a family. If ...

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

@Shaun_Paskin 

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Shaun_Paskin

Pain Management

Over the past 15 years or so I have taken a host of drugs (ending with ‘in’) without success. Even the last course of lidocaine infusions failed to have the same affect that they originally did. The pain management consultant informed me that the only other way to go was Morphine patches. My GP was...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@Lilypalooza 

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Lilypalooza

Having a wobble

I've had symptoms for the past 8 years but was only officially diagnosed in February. I thought I was handling it ok - wasn't looking to change anything I'd been doing just maybe not push myself as hard - then Covid-19 hit. Again was ok at the start but now my fatigue is hitting me earlier and earli...

@FD1704 

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FD1704

Buddy scheme

Hi I was sent email about having MS buddy today which I would love to happen as recently been diagnosed and waiting to see neurologist. I’m have 404 error. Can someone help x Thanks K x