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@ColettePage 

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ColettePage

Plummeting mobility!

I’m not on medication for my PPMS & only diagnosed mid April. Tbh I feel totally abandoned by my neuro ms nurse & consultant. The ‘advice/ support’ line for them doesn’t even allow messages to be left, you have to wait for a clerk to answer & they give you a tel appt, if no one answers t...

@CarolO 

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CarolO

Treatment plan

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...

@RebeccaR07 

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RebeccaR07

Toilets in supermarkets

Just been to get some shopping and I really needed the loo.. but the toilets were closed! In which I had to leave my shopping and drive home to use the toilet. Anyone else having this problem when your out and about?? Or is there anyways that people with MS can use the toilets in supermarkets? Thank...

@laurainiho 

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laurainiho

Re starting treatment

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

@Ralee 

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Ralee

New guy saying howdy

Howdy all, I'm new to this site after my MS nurse pointed me in this direction. A little about me: I'm a 34 year old Male. Married with a young son, 7 months old. I Live in Southampton. I enjoy paddle boarding, going out on my mountain bike. I did enjoy the gym but haven't really been since Aug 2...

@Massery 

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Massery

Staying useful

How do you stay useful when you have a crippling disease like ms?’s

@Sophietest 

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Sophietest

Family Matters

https://www.instagram.com/p/CArz6I8gwTj/ Family Matters is a new short film series by Shift.ms that aims to capture the value of an MSer’s close support network and the impacts that diagnosis can have on relationships. When Daniel was 15 years-old he woke up one morning unable to see or walk. He wa...

@juliacemilligan 

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juliacemilligan

Ballet

Don't know if anyone is interested in ballet but I found this when looking for activities for my work to post about. It's at the Royal Opera House streaming from the 29th of May until the 11th June. A new ballet by Cathy Marston telling the true story of Jacqueline du Pré, the prodigiously gifted ...