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Undiagnosed Think i have MS

Hi; only just joined and hope i am doing this right folks..I am undiagnosed. I have mentioned twice to GPs that i am sure i have MS but they brushed it off saying such as,MS sufferers dont have problems with heat like i do so i want s to see a private Neurologist but i still need a referral letter o...

@jade770 

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jade770

I'm on the struggle bus

Sorry in advance ... I just need to vent a little and I thought this would be the right place. It's nice to have a group of people that know what you're going through. I'm seriously on the struggle bus. I've been deemed "high risk" for covid so I've been exiled from my home and banished to my nanna'...

@StrictlySoca 

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StrictlySoca

Rant about awwww

Wtf just had to cancel a booking for a long weekend with guests at a big cottage as part of my now postponed civil partnership celebrations, casually mentioned got MS so additional factor in not having large gathering due to COVID risks. Having mentioned cancelling party, not able to book the bloom...

@snow 

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snow

Ms

Hi been seeing neurologist for 5 weeks, been suffering with double vision, pins/ needles,falls,headaches, no sleep, tired for last 22 months, had head scan which is clear, had spine scan but results shows bulging disks in neck and wear and tear on lumbar spine, I had lumbar puncture yesterday and lo...

@Will_Berard 

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Will_Berard

Has anyone had COVID-19 (yet?)

I'd like to hear first or at most second hand an account of what it's like for a PwMS to go through COVID. I'm surprised and a bit concerned that I've not seen one here yet. Either we're very good at shielding, or we tend to die of COVID, or both. Or it's just a quirk of stats, and the rate of inf...

@ncm22 

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ncm22

Brainstem relapse help please ?

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

@Muffie 

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Muffie

Daily symptoms - every day

Can someone help me? I’ve searched the web and all the MS sites and can’t find the answer. I would like to hear from someone who has symptoms daily that come and go. Like everyday. For instance I permanently have numb feet but sometimes in the day it travels up to my knees then goes away back to jus...

@Safra_Iqbal 

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Safra_Iqbal

Can women with ms get pregnant

I was told women with ms can get pregnant and their is no difference of it. But what are the chances of a woman living with ms former than 11 years being conceived is she has her ms completely under control? When I was diagnosed at a young age and learnt about the sickness my only wish was to have ...

@lemtrada-uk 

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lemtrada-uk

Cycling with compromised balance

<p>I used to be a keen cyclist prior to getting MS. From losing my balance (and ability to walk unaided for long distances) to today, I haven’t rode a bike for 10 years. Now that my young son has learned how to cycle, he wants me to join him on a short bike rides around our block of streets.</p> <p>...</p>

@Claire_Juliet_Woon 

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Claire_Juliet_Woon

Tecfidera

I have been on Tec just over three weeks and third week on two tablets of 240. Last four days extreme diarrhea also nausea and stomach cramping. Spoke with MS nurse who said was probably at stomach bug. Everything I have read in the booklet and on here suggests could be a side effect which I told h...