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@Aiga_Akmentina 

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Aiga_Akmentina

MS everyday support/ opinion

Years ago I needed to change my life completely! Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. After 17 years living with MS I feel that there is something more I can do. I`m thinking of creating MS mom needs serving, supportive, a...

What digital services do you use?

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

@twiggy3 

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twiggy3

Flare up / relapse

Hi to you all , it's not a relapse I'm having as mri shows no new lesion. But my old symptoms have flared up for 5 weeks now which is getting me down. Can a flare up last week's/ months. Never had this happen before, as I've been symptom free for 16 yrs. Had ms 22 years . Any info id appreciate. Th...

@Miranda_McNair 

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Miranda_McNair

Newly Diagnosed: 6-29-20

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

@Tania_Pilz 

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Tania_Pilz

Waking up with numb hands

Hello MSers! I was wondering if you have ever woken up with numb hands and if this could be related to MS or medication (Tecfidera)? This sensation is different, is just like when you sleep in a weird position and your arm or legs fall asleep, very different from the normal MS numbness and tingling...

@chriscoxrox 

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chriscoxrox

Something new

Two musicians with MS One in Texas and the other in New York have made something amazing over the last year and a half and never even met in person. This conceptual album is about to change the game. Not only the music but most of the animation and artwork were done by the two musicians with #multip...

@Sabina_Frunza 

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Sabina_Frunza

Hello :)

Hello everybody. I just found out about this forum and looking forward to connect and share our experience :) I've been diagnosed a year ago and still learning on how to " collaborate" better with my new friend MS. I hope all of you are safe during this hard period!

@Lisamarie@6 

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Lisamarie@6

Recently diagnosed

Hi , I was diagnosed last nov with MS . I have been on Copazone since jan but after a second relapse I was told it’s not working . I’m starting Tysabri on the 17th July . Just wondering if there’s many side effects . I’m still getting my head around the diagnosis. Sorry just another question , I’m ...

@AndyG 

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AndyG

New to the group.

Hi all I'm new to the group having only been told I have MS last Thursday although haven't been officially diagnosed but the MS consultant is pretty sure. Bit of a whirlwind following the news bit being as positive as I can. I have an appointment with my specialist nurse in a couple weeks where trea...

@KaijuRising 

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KaijuRising

Other specialists you may have seen?

I am wondering if anyone has seen either a geneticist or immunologist in the context of your MS. My brother is encouraging me to go, and he is also encouraging me to eat a keto diet. He doesn't quite articulate what he thinks these other doctors can do for me. My brother reads a lot of books about h...