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Hello, I just joined and Im so happy to be here!!

I've looked it up and apparently, it's a rare effect of MS only 6%. And doctors prefer to say that is probably caused by another factor. I've just lost hearing in my second ear, the first went 12 years ago in very similar sudden onset. I'm on steroids but I have to say this has really knocked all h...

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

Don't know if anyone is interested in ballet but I found this when looking for activities for my work to post about. It's at the Royal Opera House streaming from the 29th of May until the 11th June. A new ballet by Cathy Marston telling the true story of Jacqueline du Pré, the prodigiously gifted ...

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Hello to everyone, I have just joined you. I was initially diagnosed in 2009 with ADEM & thought it was benign MS. I have had ongoing symptoms over recent years which led to a recent MRI showing multiple lesions. The Consultant has diagnosed MS and referred me to Queens Square in London. I ...

Hi there, how am a newbie to the forum so hello all... I am looking for some advice to help me support a family member with MS who is quite isolated.I was wondering if anyone could advise on any technologies available to ensure my aunt feels more included and connected to friends and family. Her mo...

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

Hello, shiftoids, Our Coven of Covid Companionship has ceased to operate covertly, because that was too much alliteration. We're having a public, and, if all goes well, weekly Sunday night Convocation of the Covid Coven of Companionship. 6pm UK time (BST), that's 5 UTC, it should be sunday aftern...

Hi all, I’m new to the site, just thought I’d say hello. Bit a about me, I’m a Brit living down under, I have a 10 year old child.....opps I meant 11 (do birthday during covid lock down even count!?! 😂) I love playing hockey and drinking coffee looking out over the sea 🌊 Rx