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@Henrietta 

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Henrietta

First call with MS nurse - what to ask?

Hello you lovely lot. I was diagnosed with RRMS on July 24 over the phone and have my first phone appointment with my MS nurse next week. I’m not a huge fan of phone appointments - would be so much nicer to meet face to face - but covid means it’s all by phone. Anyway I want to make sure I make the ...

@Underdog 

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Underdog

Cannabis documentary...... aighhhttttt!

Nicked this link from a post over on the M S Society forums......................... https://www.youtube.com/watch?v=mlQ9AFjsVK8 Just watched this documentary and I can't believe I have not seen this before. Alright it was first made approx 4 years before MS came into my life but I think it is rea...

@zackHussain 

Last reply

zackHussain

Hello 😀

Hello All I was diagnosed with MS back in 2003 I’ve had my ups and down I’ve never been on any forums like this before so all new to me after pushing my doctor I’ve managed to have another MRI after 17 years to see how my MS has progressed and awaiting results next week @ 39 now I am worried to be h...

@Miranieva_Buen 

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Miranieva_Buen

Pharmaceutical companies/foundations

Hello, everyone. Due to complications, I am forced to take monoclonal antibodies. I am still to take Aquaporin 4 to see if I'm supposed to be on Nataluzimab or Rituximab. However, both medicines have to come from abroad as I live in the Philippines and is not covered by insurance. Can anyone please ...

@Scott_Alderson 

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Scott_Alderson

Greetings and salutations!

Hello from Calgary,Alberta ,Canada. I am Scott, diagnosed May 10/2012 Primary Progressive Multiple Sclerosis. Poet with 8 books in print(2017 release "Imaginative Spasms". 5 YouTube videos(Scott Alderson Poetry). Life is good, just different. Still human, simply modified. Hope for today is that y...

@MattW 

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MattW

Sildenafil thoughts please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Celia_Foley 

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Celia_Foley

Ocrelizumab

Hello everybody, I have had Progressive for 26 years since I was 25. I recently was educated on Ocrelizumab and got excited ! I do hope that I can begin on it. Please let me know how you people who are on that treatment are finding it. Thank-you, Celia

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g

@cDENIS 

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cDENIS

@zdskjfgkz

Hello, have you been able to check out the new shift ms site? it's pretty nice.
Oklahoma City, Oklahoma, United States of America