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MS moms & opinion poll

Years ago I needed to change my life completely. Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. I was afraid to dream about the future or even live a day with love, care, and understanding to myself. I felt guilty when I wanted to ...

@seaairsally 

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seaairsally

Autoimmune Neutropenia after Lemtrada

Hi community, Does anyone have experience of neutropenia after Lemtrada? Horrid to have to deal with extra things on top of the MS. If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally. Thanks, Sal

Call out for a counsellor

Hello MS team! I am an actor writing a play which includes my experiences as an MS warrior. I wanted to know if anyone here has MS counselling experience or can recommend? I would love to have a chat with them by way of researching other perspectives of MS, rather than just my own. I'd also be ...

@TonyMS47 

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TonyMS47

Ocrevus

I am switching from Tecfidera to Ocrevus. I'd been waiting since the beginning of the year and then the coronavirus came into play. So now I am still waiting. It seems that I had new lesions on my last MRI scan even though I'd been on Tecfidera for the last five years. I just hope this thing starts ...

@EllieSmith 

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EllieSmith

Tic disorder from MS?

Well I'm back to see if anyone knows anything. I've had problems with movement disorder since 2018. - while it's being worse the past few days alongside my spasticity. The thing that confused me is it's like I've got this new tic disorder or maybe it's just worse i dont know. Basically in the pas...

@JayJay10 

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JayJay10

Completely fatigued!

This heat is unbearable... Truly and utterly roasting my Cock off!

@BULLMAN 

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BULLMAN

Som’at I heard

The world is full of cunts. Don’t believe me. Go to a pub and shout you cunt and everyone will turn

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@Shannon_Devlaminck 

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Shannon_Devlaminck

Well it’s been a minute.

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...

@KeepSmyelin99 

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KeepSmyelin99

Checking in! :D

Hi everyone! I'm just coming back to check in as I realise I've not been around for a while. I had NEDA (No Evidence of Disease Activity) on my last MRI and have been feeling fine since then *touch wood* I became friends with an amazing woman who also has MS and hosts a podcast about living with a...