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I took my first 1/4 dose yesterday around 6 pm. For awhile, I didnt feel anything. Around 5 hours later, I woke up with violent shaking chills, but managed to sleep off and on. A couple hours later, I woke up very nauseous and vomited a couple times. I went back to sleep, and when I woke up this mor...

Hi thank you for my membership, I’m looking forward to hearing from and about you! I’m looking for advice and also keen to learn if anyone else feels like their internal thermostat is broken. I do not know what triggers it. I sweat 💦 so much that it is making me feel pretty crap. Along with the swe...

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now fo...

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

Anyone having Botox jabs for spasticity? I’ve tried the following Baclofen, Gabapentin and Pregabalin with hideous side effects. Now Botox has been suggested for my left leg. I’m hoping to see De Ling in Cambridge. Any experience out there? Thank you people.

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

I am the husband of the person who was diagnosed with multiple scerolsis. My butiful wife is Sarah and she is only 41 we recently moved across the country and shortly after that I started noticing that her hair and balance were giving her trouble. It was so bad that police officers have stopped her ...

Ms is such a funny desease to have I use crutches to walk as my right leg is badly affected ive has surgery on my ankle to straighten foot, stop drop foot and waiting surgery on all toes now have clawing on right foot, people say was it worth having the surgery in first place . Well yeh I wouldn't ...

Hello you lovely lot. I was diagnosed with RRMS on July 24 over the phone and have my first phone appointment with my MS nurse next week. I’m not a huge fan of phone appointments - would be so much nicer to meet face to face - but covid means it’s all by phone. Anyway I want to make sure I make the ...

Hello All I was diagnosed with MS back in 2003 I’ve had my ups and down I’ve never been on any forums like this before so all new to me after pushing my doctor I’ve managed to have another MRI after 17 years to see how my MS has progressed and awaiting results next week @ 39 now I am worried to be h...