Can anyone tell me if Tysabri infusions are free I have been recently been diagnosed with RR MS and will be starting this infusion soon. Are they free if you only have private health insurance 😊
Hi; only just joined and hope i am doing this right folks..I am undiagnosed. I have mentioned twice to GPs that i am sure i have MS but they brushed it off saying such as,MS sufferers dont have problems with heat like i do so i want s to see a private Neurologist but i still need a referral letter o...
Sorry in advance ... I just need to vent a little and I thought this would be the right place. It's nice to have a group of people that know what you're going through. I'm seriously on the struggle bus. I've been deemed "high risk" for covid so I've been exiled from my home and banished to my nanna'...
I'd like to hear first or at most second hand an account of what it's like for a PwMS to go through COVID.
I'm surprised and a bit concerned that I've not seen one here yet. Either we're very good at shielding, or we tend to die of COVID, or both. Or it's just a quirk of stats, and the rate of inf...
Hi everyone,
I have just read something about brainstem lesion.
In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing.
I am quite worried about this, as I believe if you have a
relapse in that area, it is a part of the brain...
Can someone help me? I’ve searched the web and all the MS sites and can’t find the answer.
I would like to hear from someone who has symptoms daily that come and go. Like everyday. For instance I permanently have numb feet but sometimes in the day it travels up to my knees then goes away back to jus...
I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...
I've looked it up and apparently, it's a rare effect of MS only 6%. And doctors prefer to say that is probably caused by another factor. I've just lost hearing in my second ear, the first went 12 years ago in very similar sudden onset.
I'm on steroids but I have to say this has really knocked all h...
I really really try not to complain about my limitations and instead try to focus on the many blessings I have, but....
My son just left for a beautiful hike with my sister. It used to be my very favorite thing to do. However, my left leg has a mind of its own and I can no longer walk well enough o...