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@poleyjo 

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poleyjo

First Neurology appointment

So after more than 6 months of real struggle with suspected MS symptoms I finally have my first appointment with a neurologist on Sunday. Can anyone please give me insight on what to expect? I have been tracking my symptoms and will condense this list and take it along with me. Is there anything els...

Mavenclad Success

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@cwe33 

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cwe33

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

@WendyHills 

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WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

@Hayla 

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Hayla

Relationship Stress

MS is stressing. We MSers know that first hand. Unfortunately seems that my boyfriend of 6 years is only now realizing that. We have been fighting a lot and he has said very hurtful things to me. Its true that he apologizes when his temper has cooled off but truth is that for the past few months we ...

Used a wheelchair for the first time yesterday!!

and it made me feel so much better. Basically i could enjoy our day out at the Black Country museum instead of looking down at the floor trying to keep my balance and stop falling over!! And, by the end of the day i wasn't totally knackered by fatigue. I'd not planned on it but the woman at the r...