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@Annie_Edlington 

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Annie_Edlington

Work life balance

At the moment my fatigue is through the roof. I am currently working full time but spend most of the weekends in bed or on the couch. I’ve thought about reducing my hours and doing a 9 day fortnight for a while but I’m not sure if this would help me. Has anyone found reducing their work hours ben...

@poleyjo 

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poleyjo

First Neurology appointment

So after more than 6 months of real struggle with suspected MS symptoms I finally have my first appointment with a neurologist on Sunday. Can anyone please give me insight on what to expect? I have been tracking my symptoms and will condense this list and take it along with me. Is there anything els...

Mavenclad Success

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@WendyHills 

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WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

@whitneya 

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whitneya

Quitting job after diagnosis?

Hi all, I am 22 and was diagnosed with rrms in July after an attack in May. I’ve just started a dmd. Still have some symptoms - fatigue, feeling faint and I overheat quickly. My managers know, but they just don’t get it. My job is so fast-paced and they still think I can do anything and everything...

@VanBax 

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VanBax

Negativity

Hi Everyone I’ve had MS a while now but have recently noticed (probably as I’ve recently been walking slower and with a slight limp and have probably been looking more fatigued than usual) that people, who do know me, talk to me in the same way as they would a child and/or can be very patronising....

@mser79 

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mser79

Ocrevus- fatigue following infusion

Hello. Just wondering what people's experience of fatigue following Ocrevus infusion was? We were planning on trying to take a trip away (in the UK) immediately after the second infusion. Trying to understand if that's advisable given energy levels? Thanks

@Isa_Elfers 

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Isa_Elfers

Cymbalta

Hi all, first post. I'm 22 and slogging through the long and troublesome diagnostic process to figure out what's going on. My strong suspicion is MS, but my objective clinical indicators are either barely there or nonexistent ⁠— I have small demyelinated lesions and speckled ANA blood titer, but tha...

@xhulia 

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xhulia

MRI is the same

Hi guys, please help. I did an MRI today and my result is no active lesions neither enhanced or added. So from November 2019(my last MRI) according to the radiology examination nothing is changed. But in reality I feel so much worse. I used to walk miles on november and now I cant walk even 100 mete...