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Hi, after a recent spurt of relapses, my consultant and his team are putting me forward for a change in my medication. I am normally on the 3 times weekly copaxone, and they are looking at ocrelizumab. I've looked at the BNF, and medicines.org.uk, at the ocrelizumab, and wanted peoples take on it. L...

I am wondering if anyone has seen either a geneticist or immunologist in the context of your MS. My brother is encouraging me to go, and he is also encouraging me to eat a keto diet. He doesn't quite articulate what he thinks these other doctors can do for me. My brother reads a lot of books about h...

Years ago I needed to change my life completely. Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. I was afraid to dream about the future or even live a day with love, care, and understanding to myself. I felt guilty when I wanted to ...

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

My name is SCHULZ ALICE and i am 46 years old . I was born on 19/01/1974 in Carinthia (Klagenfurt)Austria . I grew up there till the age of 20 when i started having Vision problems,Fatigue and weakness,Bladder and bowel dysfunction,Sexual dysfunction,Cognitive problems. Since i was still young i nev...

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Hello all, Well I don't know where to begin!? Guess I should start here. Joined this site nearly 4 years ago just after I was diagnosed. I have had this thing approximately 20 years. Not on any medication, not that there seems to be much, the same as help with this - not much. I suppose when I w...

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...

I’m not on medication for my PPMS & only diagnosed mid April. Tbh I feel totally abandoned by my neuro ms nurse & consultant. The ‘advice/ support’ line for them doesn’t even allow messages to be left, you have to wait for a clerk to answer & they give you a tel appt, if no one answers t...

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...