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Hello everyone, hope you are all well.......... It looks like I am/ have been starting to relapse. For a few weeks now my legs are heavy and numb and I am waking up in the morning needing almost 30 minutes to get my legs moving before I can get out of bed. My vision is going hazy throughout the day...

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

Newly diagnosed with RRMS, worried about what the future holds Struggling to get my head around it

Hi my name is Erika Iam 32 years old, I was diagnosed in 2012, am taking tysabri. I got married two years ago( I have a 14 year old son now, doctor said am stable and am good to start planning on having a baby but for that I would have to change my treatment to Ritaxon, I’ve read it’s good to start ...

Hello all, Well I don't know where to begin!? Guess I should start here. Joined this site nearly 4 years ago just after I was diagnosed. I have had this thing approximately 20 years. Not on any medication, not that there seems to be much, the same as help with this - not much. I suppose when I w...

Hi! I have a question about how everyone manages working out while in a flare up. do you still push through or is it better to keep things calm while my body is sorting itself out? I just started my flare up 5 days ago and I’m having a moment of frustration ( make that many moments ) My fatigue...

I’m not on medication for my PPMS & only diagnosed mid April. Tbh I feel totally abandoned by my neuro ms nurse & consultant. The ‘advice/ support’ line for them doesn’t even allow messages to be left, you have to wait for a clerk to answer & they give you a tel appt, if no one answers t...

How does one overlook a main family member thinking I faked the diagnosis of MS..?

I can separate my family into three groups. First up are my siblings and my daddy. Daddy and my older sister will ask sometimes how I am doing, but I feel it is mostly like an obligation to them. My two older brothers never ask and I never bring it up. Next up are my in-laws. They always ask and th...

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...