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@jenny_1 

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jenny_1

Summer Hols

<p>Is it safe for someone with PPMS to holiday in Devon UK this July .. We are prepared to follow all the rules given out by the government. I know MS means a compromised immune system but not sure if MS is on the vulnerable list ?</p> <p>Thank You<br> Jenny </p> <div class="i-support-link"> &lt;...</div>

Feeling better or worse after infusions?

<p>Hi,</p> <p>I just had my latest infusion of Rituxan (after a COVID delay), and I always feel terrible afterward, but I’ve heard people say they feel better after treatment. Is this a case of “no two the same,” because of different DMTs, a combo? Just curious as I sit here in my post-infusion blah...</p>

@jamoranto 

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jamoranto

Happy Sunday crew.

<div class="embed-wrapper video-embed-wrapper"></div> <div class="i-support-link">...</div>

@thirteen 

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thirteen

Newbie here

<p>Need some advice. I have had health issues half my life. First started when I was about 16. I’ve been trying to find answers for years. Just recently found out that Ms was put in my medical records 2 years ago, although the Dr never verbally told me this. I also have trigeminal, occipital a...</p>

@Emma_Byers 

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Emma_Byers

Face and head pain

Sorry long post!! Finally got a diagnosis in March this year. Been a long haul from 2013. In the last 4 days I've had excruciating pain in my face and a banging headache. Back in 2013 it was optic neuritis I was diagnosed with but I ended up with more symptoms and everything got worse over the years...

Central Scotland meet

<p>Hi!</p> <p>Welcome to our wee friendly group! </p> <p>We’re having a virtual meet up tomorrow on Houseparty from 12pm. </p> <p>We usually meet up in either an ice cream parlour, pub / restaurant or tearoom locally and have either brunch or lunch or afternoon tea, depending on the time of da...</p>

@mser79 

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mser79

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

@crockett32 

Last reply

crockett32

Life with severe foot drop

<p>Hi guys,<br> As I said in my introduction, passive neurologists and lack of initiative on my part have led me to suffer a severe foot drop (or club foot), which makes me almost drag my right leg. Foot drop has also confused me, because I thought I didn’t have RRMS, but SPMS, but shortened...</p>