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@strawberryblonde 

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strawberryblonde

Moving to Dublin Ireland

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...

Started Copaxone - tips from MS Nurse!

Hi all! I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because...

@Natale_J_Berube 

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Natale_J_Berube

I have rr ms

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...

@charlotte_wright 

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charlotte_wright

Ladies on lamotrigine

Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...

Reducing work hours

quick question not sure if you anyone will be able to assist I am contemplating reducing my work hours and thought the reduced pay might have been offset by income protection but apparently not so, don't suppose anybody has similar experience?

@Colleeny 

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Colleeny

What were your first symptoms?

I'm 25 and my mother was DX before I was born. It's been 5 years since she has passed. I feel as I'm having symptoms but not sure. Maybe it's all in my head and I'm just worried for nothing. I've had bad headachs since I was very young. But the last 2 months I've noticed something's. Stiff finger...

@beth26 

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beth26

Tired of being tired

Having a flare up with all my old symptoms , been going on for the last month or so , have had 2 bouts of new symptoms since round 2 of lemtrada 15 months ago , no new lesions on my Last mri Just feeling pretty down about Feeling like I’m Getting worse and struggling doing simple things There are ...

@Kelly_Brown 

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Kelly_Brown

Ocrevus - Shielding.

Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...

@cailindeas 

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cailindeas

MS and breast feeding

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...

Is my MS progressing?

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...