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@Colleeny 

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Colleeny

What were your first symptoms?

I'm 25 and my mother was DX before I was born. It's been 5 years since she has passed. I feel as I'm having symptoms but not sure. Maybe it's all in my head and I'm just worried for nothing. I've had bad headachs since I was very young. But the last 2 months I've noticed something's. Stiff finger...

@beth26 

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beth26

Tired of being tired

Having a flare up with all my old symptoms , been going on for the last month or so , have had 2 bouts of new symptoms since round 2 of lemtrada 15 months ago , no new lesions on my Last mri Just feeling pretty down about Feeling like I’m Getting worse and struggling doing simple things There are ...

@Kelly_Brown 

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Kelly_Brown

Ocrevus - Shielding.

Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...

@cailindeas 

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cailindeas

MS and breast feeding

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...

Is my MS progressing?

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...

@Lauren_Evans 

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Lauren_Evans

Netflix project!!

Calling all aspiring actors! I am casting the third series of a very successful Netflix show. Please do take a look at the brief below and get in touch if you are interested: Roland is in his 40s. Warm, cheeky, sharp, witty. He has MS with mobility and fatigue symptoms. He lives on his own with ...

@Feloreena 

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Feloreena

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

@Laura_Martin 

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Laura_Martin

Hello All

Good morning all, My name is Laura and I’m 30 years old. This morning I’m sitting waiting to take my first Tecfidera tablet which was delivered yesterday. I genuinely thought I just had damaged nerves in my back from pushing myself at an exercise class, falling over as my leg stopped working and no...

@Aiga_Akmentina 

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Aiga_Akmentina

MS everyday support/ opinion

Years ago I needed to change my life completely! Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. After 17 years living with MS I feel that there is something more I can do. I`m thinking of creating MS mom needs serving, supportive, a...

@Miranda_McNair 

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Miranda_McNair

Newly Diagnosed: 6-29-20

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...