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@Feloreena 

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Feloreena

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

@cwright17 

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cwright17

People's experiences with medication

Hi, after a recent spurt of relapses, my consultant and his team are putting me forward for a change in my medication. I am normally on the 3 times weekly copaxone, and they are looking at ocrelizumab. I've looked at the BNF, and medicines.org.uk, at the ocrelizumab, and wanted peoples take on it. L...

@Lisamarie@6 

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Lisamarie@6

Recently diagnosed

Hi , I was diagnosed last nov with MS . I have been on Copazone since jan but after a second relapse I was told it’s not working . I’m starting Tysabri on the 17th July . Just wondering if there’s many side effects . I’m still getting my head around the diagnosis. Sorry just another question , I’m ...

@Wayne_Kirby 

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Wayne_Kirby

Copaxone

Hi everyone I have had RRMS for 15years and have been relatively well but getting worse recently I'm due to start my copaxone treatment with the first delivery Monday and a nurse coming after that but have now been told it wont be with auto injector and I thought it was supposed to be as my hands sh...

@tiffscriv 

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tiffscriv

Extreme shivering/chills with Brabio

Hi, It’s currently just gone 1am here in the UK after the hottest day this year and I am wrapped up in my duvet and I cannot stop shivering. I’m aware this is a common side effect when using Brabio/Copaxone but was wondering if anyone else has experienced similar and how long does it generally last...

@angieH 

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angieH

RRMS to SPMS?

I have read that rrms always eventually becomes spms. Is this so? I have a neuro who says that usually by my age (53 and diagnosed at 29), ms has established the pattern it is going to be. One sounds promising and one not so much. What would clue me in that it’s becoming spms? I have more difficu...

@angieH 

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angieH

Joint pain

Hi! I am hoping to get some feedback. I am dx RRMS. Doing pretty well, on Glatopa (copaxone) about three years. Anyway, I am having serious joint pain in both hands and mainly thumbs. Maybe carpal tunnel but I have much joint pain in other areas like knees and feet. But the hands are the worst. An...

@julesfyah 

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julesfyah

Treatment

Well, one month on Copaxone and I've had to quit because of the injection site reactions getting too much. It's left dark marks on both hips, my stomach and left a dent in my left thigh after only injecting once. Glad I'm off it. How people could put themselves through that for years I have no idea....

@Jem_Carter 

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Jem_Carter

Seizures and MS

Hi all, hope everyone is doing well. I just have a question...I've had MS for a few years now, rapidly evolving severe, I've had 2 courses of lemtrada but after 1 year of my last course I had new activity so my neurologist put me on copaxone injections. I wasn't eligible for ocrevus as my immune sys...

@ncm22 

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ncm22

Started dmds 8 years after diagnosed hel

Hi, I have rrms, diagnosed in 2010, symptoms since 2007. I started copaxone in 2018, had MRI new lesions. So started tecfidera in February this year. I just wondered as i have not been on dmds for 8 years after being diagnosed. Whether the dmds would be less effective going forward, I know t...