Looking for
something specific?

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

I have been on Tec just over three weeks and third week on two tablets of 240. Last four days extreme diarrhea also nausea and stomach cramping. Spoke with MS nurse who said was probably at stomach bug. Everything I have read in the booklet and on here suggests could be a side effect which I told h...

I've looked it up and apparently, it's a rare effect of MS only 6%. And doctors prefer to say that is probably caused by another factor. I've just lost hearing in my second ear, the first went 12 years ago in very similar sudden onset. I'm on steroids but I have to say this has really knocked all h...

How much of your immune system do you think is not suppressed? If you know about some research or info I'd love to read. Perhaps 20-40% I'd guess is active seeing as treatment is labeled as causing a low immune system.

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

Finding a way to get the human nervous system to grow back the myelin, the nerve covering that MS attacks and causes the symptoms, be they minor or major, we all experience is the next huge hurdle. - I link to a total science paper here: https://www.cell.com/cell-reports/pdf/S2211-1247(20)30611-2.pd...

<p>Hi,</p> <p>I just had my latest infusion of Rituxan (after a COVID delay), and I always feel terrible afterward, but I’ve heard people say they feel better after treatment. Is this a case of “no two the same,” because of different DMTs, a combo? Just curious as I sit here in my post-infusion blah...</p>

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...