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@fuzzy9 

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fuzzy9

PPMS

Hello! I was recently diagnosed with PPMS. Ever since I have had usually heartburn and swallowing issues. I visited gastroenterologist some months ago and according his review I had no visible problems when swallowing. The question is that can MS cause problems with swallowing? Whenever I try to sw...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@Lynn_Johnson 

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Lynn_Johnson

Shoulder pain

Does anyone get pain in their shoulder, can't lift my arm to brush my hair, sometimes my wrist but no injury. Do you the hot summer heat causes this.?

@Jill0827 

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Jill0827

High humidity cooler temps

Some of my worst symptoms come during high humidity- regardless if temps are hotter or cooler. It’s a “heavy” feeling in my head that is difficult to describe (not a headache) but leads to nausea, dizziness and overall misery. I see my neuro on Monday so will ask her but I can’t seem to find ways to...

@Carole-Ann_Scott 

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Carole-Ann_Scott

New symptoms not a relapse?

Hi again So I’ve just met with my neuro - was told this was to start treatment however it was not the case! He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal...

@ZePlanet 

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ZePlanet

Clemastine Fumarate (Tavégyl or Tavegil)

Does anyone has any feedback concerning taking this Anti-histaminic for a remyelination purpose. All the feedback i found in the internet it always someone that started a few days and then stoped cause of the spleepy effect, no feedback on the long run. There is a study that went out this month that...

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@Dalex 

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Dalex

please HELP!

Hi my name is Dominique. I went into the hospital last week because I had some type of stiffness, weakness on my left side. I instantly thought it was side effects to my medication, but long behold, after a MRI, they found lesions in my brain and spinal cord. Being diagnosed with RRMS and being a ...

@lemtrada-uk 

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lemtrada-uk

Lost ability to urinate

Need some advice please guys. Has anyone else lost their ability to urinate following an excessive hospital stay due to a physical trauma. Recently I broke my femur so was hospitalised. Whilst in hospital, I was urinating via a long term catheter. My bladder had gone into retention caused by the tra...

@Hayleyp3 

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Hayleyp3

Neuro wants me on Aubagio

Just wondering what peoples experiences are on Aubagio, as a little scared. Copaxone caused a massive allergic reaction and I ended up in hospital, and tecfedira made me feel so ill. Been off meds a few years but need to get back on something. What was your experience on aubagio? Thank you xxx